If you haven't seen Aubrey Hirsch's cartoon depiction of her story of not being taken seriously by doctors, you have to see it. Every woman who's had any sort of interaction with the medical profession will relate. This story is far far too common. (As the stories shared on this blog makes clear, of course.)Read More
I was diagnosed with lupus around the age of 19, and I can honestly say that the process of actually getting a diagnosis from a doctor was harder on me emotionally than the diagnosis itself.Read More
"Oh!" the gynaecologist exclaimed. She lowered the speculum as I raised myself on my elbows, the better to look at her. "You're very well informed!" A raised eyebrow, a smirk playing on her lips. Of course I am, I said. It's my body, and I know it better than anyone else. I placed my hands under my bum and lifted slightly, the way the Nurse Practitioner had shown me last year. I found out I have a tilted cervix at 24 years old - I found out at my first smear test, last June. After 14 years of periods, of examinations, of seeing various doctors for contraception, and not one of them had told me that I have a tilted cervix. Years of painful sex and tampon insertion, and not knowing the reason why.Read More
I don't remember when the constant pain and exhaustion started, but I remember a day in graduate school where the thought of walking upstairs to my second floor apartment was so daunting that I slept in my car. It was below freezing and very snowy that day, so this wasn't a decision that I took lightly.Read More
Jennifer Brea gives a moving TED talk about the difficulties facing those with myalgic encephalomyelitis (ME), also commonly known as chronic fatigue syndrome (CFS).